Encephalitis
3 hours ago
- #recovery story
- #anti-NMDA encephalitis
- #autoimmune disorder
- The author developed anti-NMDA receptor encephalitis, an autoimmune disease causing brain inflammation, starting with flu-like symptoms and severe psychological issues.
- Initial misdiagnosis as a psychiatric disorder led to hospitalization, but intervention via neurology at Brigham and Women’s Hospital expedited life-saving treatments like IVIG and steroids.
- Early detection contributed to a positive prognosis, with the author participating in the CIELO clinical trial for satralizumab and gradually tapering off medications during recovery.
- The author credits his wife, Kaitlyn Brady, and employer, Charlie Marsh, along with others, for unwavering support that was crucial throughout the ordeal.
- Reflections compare the experience to accounts in 'Brain on Fire,' noting differences but similar psychosis, and express gratitude for modern medicine preventing speculation like demonic possession.