Living with Williams Syndrome, the 'opposite of autism' (2014)
8 days ago
- #Genetic Disorder
- #Williams Syndrome
- #Autism Opposite
- Chris Steel, a 40-year-old with Williams Syndrome (WS), is friendly and enjoys acting but struggles with independence and anxiety.
- WS is a rare genetic disorder (1 in 18,000 in Britain) often called the 'opposite of autism' due to high empathy but low IQ and anxiety issues.
- People with WS may have heart problems, developmental delays, and learning disabilities, and can be overly trusting, making them vulnerable.
- Acting helps individuals with WS utilize their social strengths, as seen with Chris's involvement in Mind the Gap charity performances.
- WS individuals often require constant reassurance and may struggle with understanding social nuances, leading to potential dangers.
- Diagnosis can be challenging; facial features in children include a small upturned nose, wide mouth, and distinctive eye patterns.
- The Williams Syndrome Foundation advocates for more awareness and support, as government funding is lacking compared to autism.
- WS does not affect life expectancy, and some individuals may work voluntarily, leveraging their helpful nature.
- Research by Dr. Debbie Riby focuses on practical support for families, addressing anxiety and other challenges in WS.