Multiple Sclerosis
3 days ago
- #Patient Support
- #Multiple Sclerosis Diagnosis
- #Health Journey
- Author diagnosed with Relapsing-Remitting Multiple Sclerosis after reviewing blood and CSF lab results.
- Diagnosis journey began in early 2021 with symptoms like numbness, tingling, and muscle stiffness, leading to MRI showing spinal lesions.
- No close genetic relatives known to have MS, but family adoptions make it uncertain; advises checking Vitamin D levels.
- Treatment involves disease-modifying therapies (DMTs) to slow progression and medication for muscle stiffness; starting early is emphasized.
- Author experienced complications from a lumbar puncture, including a spinal headache treated with a blood patch.
- Requests no unsolicited advice on MS management, emphasizing trust in local medical care in Portland.
- Asks for community support through staying in touch, helping with errands or meals, and using gift cards, with communication often routed through Sherri.
- Travel may become more difficult; remote connections are encouraged for non-local friends.